people.with.narcolepsy

 

May 6th, 2007

Page history last edited by Sam Toombs 1 yr ago

For those who wish to laugh at my expense ... :P

 

 

 I realise that narcolepsy is not a funny problem but I am very much of the opinion that it is either a laugh or cry situation so I am going to tell you about my last trip to the doctors.

 

 

I am having a hard time staying awake at the minute ( I know what you are thinking! big shock, right?) so I went to my doctors to ask for some stimulants because I am currently only on drugs to help with cataplexy (yes I finally came of my "medication holiday") She said she didn’t want to give me any because I was only 19 days away from my appointment at a neurology specialist and did not want to mix drugs at this stage.

 

 

I can see her point but this short conversation took about 20 minutes because I kept falling asleep on her (not literally on her). So as I got up I felt really bad and asked if I could take the lift down to reception because I didn’t think I could manage the stairs.

 

 

Somewhere between entering the lift and the lift reaching its destination of the bottom floor - I had a really bad cataplectic attack and I was on the floor - I vaguely remember being hauled into a chair and poked and prodded by all the doctors until mine came in and said "what the hell are you doing? Let her sleep!" (Obviously there was no swearing, I was adding that for dramatic affect)

 

 

After about half an hour I woke up at which point the fed me tea and biscuits ... it was painfully English of them!

 

 

It was like the weirdest hotel ever. They fed you and woke you up but then they went and took blood sugar levels and temperature and other uncomfortable tests - I don’t know about you but I don’t think I will be going back! :P

 

 

Things I have learnt:

 

 

- Lifts are as painful to fall into as stairs.

- Emergency buttons should be in lifts.

- Some doctor named Andrew is immensely slow at all his tasks 

- When I say I am not well doctors should pay more attention.

- The recovery position is not employed because of comfort.

- About 20 students saw me and thought I had died!

- Chocolate biscuits and tea are nice recovery food

 

 

 

 

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